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On October 25, 2000,
Andrew and Rebecca Dopheide's three-year-old daughter, Julia, was diagnosed
with Sanfilippo Syndrome, Type A, an inherited neurodegenerative disorder
for which there is no treatment or cure. As Andy and Becca learned about
Julia's disease, they were shocked to find only a handful of researchers
working on a cure--not because there was no hope, but because of a lack of
funding. It became obvious that more could be done to increase public
awareness of Julia's disease, and to direct resources to the scientific
study of Sanfilippo A and related diseases.
The Sanfilippo
Syndrome Medical Research Foundation, Inc. (SSMRF) is a volunteer
non-profit organization promoting research toward a cure for Sanfilippo
Syndrome Type A, and related neurodegenerative disorders. SSMRF was
incorporated under the laws of the State of Nebraska in November of 2000 and
received 501(c)(3) tax-exempt status in January of 2001.
All donations to the Foundation are tax-deductible.
For more information, please e-mail,
write, or call the Foundation.
Copyright ©2002 The Sanfilippo Syndrome
Medical Research Foundation, Inc. All Rights Reserved.
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