On October 25, 2000, Andrew and Rebecca Dopheide's three-year-old daughter, Julia, was diagnosed with Sanfilippo Syndrome, Type A, an inherited neurodegenerative disorder for which there is no treatment or cure. As Andy and Becca learned about Julia's disease, they were shocked to find only a handful of researchers working on a cure--not because there was no hope, but because of a lack of funding. It became obvious that more could be done to increase public awareness of Julia's disease, and to direct resources to the scientific study of Sanfilippo A and related diseases.

The Sanfilippo Syndrome Medical Research Foundation, Inc. (SSMRF) is a volunteer non-profit organization promoting research toward a cure for Sanfilippo Syndrome Type A, and related neurodegenerative disorders. SSMRF was incorporated under the laws of the State of Nebraska in November of 2000 and received 501(c)(3) tax-exempt status in January of 2001.

All donations to the Foundation are tax-deductible. For more information, please e-mail, write, or call the Foundation.


Copyright ©2002 The Sanfilippo Syndrome Medical Research Foundation, Inc. All Rights Reserved.